Our Wishlist*
Twice a Week PT (Physical Therapy)
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Twice a Week OT (Occupational Therapy)
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Daily RT (Respiratory Therapy)
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Pulse Oximeter - gadget that monitor jon's arterial blodd gas, it helps in prevention of hypoxia
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Diapers: HUGGIES XXL (We just received tons of XL diapers from "HeAvEn seNt FamiLy", enough supply for Jon until he fits XXL)
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ENFAGROW A+ milk - Jon is fed 4 ounces every 3 hr with this milk & fruit juices
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Hard Matress (suggested by his PT) for jon's bed, Jon developed kyphosis (abnormal curvature of the spine)
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Sando Shirt, sorry we have to include this in Jon's needs, he is a very sweaty kid, you will realize this when you see jon in person.
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Stimulating Toys, any toys he could exercise his fingers, arms, legs, eyes and kind of brain booster
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Bath Tub with Net - Jon has a tub w/ net however he grew very fast and outgrow his tub
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VENTILATOR - we wish to have jon his own ventilator machine
(PCSO defrays all jon's medical needs that's why we're not soliciting anything for his medical/hospitalization needs) Thanks every1 & God Bless!